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Archive for the ‘Musings and Epiphanies’ Category

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There was no reason for a 12 year old to pay attention to Patty Duke and her diagnosis of bipolar in the early 80s. Except I kept hearing her say over and over in interviews that it felt good that it had a name and now she could fix it. So I learned about her and what wasn’t to love. Nick at Night didn’t quite exist, but occasionally you could find a rerun of The Patty Duke Show. Miracle Worker with the amazing Anne Bancroft (who I love for so many reasons)? Amazing performances! Another Miracle Worker with my beloved Half-pint? Hell yeah! Married to Gomez Addams? But of course. Mother of Mikey in The Goonies? Love her in so many ways.

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But mostly for her voice. For advocating for mental health issues. For taking the conversation out of hiding. For showing me a path when I finally got to recovery and treatment. She showed that the ugliness of mental illness didn’t have to be the only perspective. She showed me I could work, be creative, be married, have a family. Doctors actually told me I shouldn’t have children. Patty had already shown me I could

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I only had half the number of her marriages, and I won’t complain about that. I found my Gomez. 😉

Please check out Sean Astin’s efforts to continue his mother’s work.

https://www.crowdrise.com/patty-duke-mental-health-project/fundraiser/seanastin1

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Tomorrow there will be no Easter egg hunt.  No silly clues telling the boys “Almost”.  No silly tasks to complete, like barking like a dog, to get a dollar.  No fights over who found both five dollar bills.  No counting the money at the pool table while eating the candy.

We also won’t sing happy birthday and watch Bearpaw open his birthday presents (four days early) as we always did on Easter Sunday.  We would wrap each part of the gifts separately because he loved opening presents.

Last year, on April 1, Bear and I went to the Longtimers’ Reception.  I received my 15 year clock.  I took a selfie of us.  The last photo of the two of us.

Longtimers

We saw Bearpaw several more times in April, then in May, and in June.  June 20 was the last time we saw him. The last photos of him with the boys.

I don’t want to pass these “lasts”.

 

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Monsters are real. And ghosts are too. They live inside us. And sometimes they win. ~Uncle Stevie

That’s why horror movies, crime procedurals, and news channels thrive. Uncle Stevie also once said that our fascination with death, with mortality, is why we slow down to look at the accident.

But the scarier aspects in life are the monsters and ghosts that live inside us. Perhaps we see ourselves in the shows and movies…in the bad guys, in the evil ones, in the ones that broke because the monsters and ghosts won.

What keeps the majority of us from losing? What enables us to not break? Faith, family, friends. I suppose the ones who lose to the monsters and ghosts don’t have that.

Where do the monsters and ghosts come from? Skeletons in family closets that linger through the generations. Relatives that hide secrets because they don’t want to deal with it or they don’t know how to handle it.

With our sons, we tell them the family history. It’s not always pretty, but we aren’t scared of monsters and ghosts. This has surprised some over the years, but we don’t want to burden them. If we’ve sorted through the closets, cleared away the cobwebs, there’s no need to make them deal with that same shit. Once it’s dealt with, it’s history so it is time to move on.

It took me a long time to beat some of my monsters and ghosts. There are new ones I’m wrestling with now. But with faith, family, and friends I am doing it.

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Three things

First thing. I wandered back into denial about my dad being dead.  Just been hanging in a place where I’ve been comfortably numb.  Now while I did cry at every holiday-related event from Halloween through New Year’s, it was not a loud, unattractive sobbing, but simply a weeping (most of the time).  I lost it a bit at the youth group retreat because the giant bear in the lobby had the same ribbon that I had picked for my father’s Christmas decoration at the cemetery.  And we had to drive through the scene of his accident on the sixth month-iversary to get home.  But I was in a car with my son, his friend, and my pastor, so I kept it quiet and muffled.  Then tonight at the annual meeting at church I really read the annual reports.  There in the pastor’s report, the funerals he presided over.  And my dad’s name in black and white. Huge ugly sobbing crying all the way home (like the littlest piggy).  Thankfully, the boys went with Hubby to Poppop’s house after the meeting so they didn’t see or hear me crying about Bearpaw.

Second thing. Ahhhhhhhhhh…that’s me exhaling.  I quit my job three weeks ago and started my new job the very next week.  Such a wonderful difference.  I truly miss the people from department at my old job and the pirates, but ahhhhhhhhhhhh.  I spend my days now working with words and it is lovely.  It is quiet.  It is focused.  There’s a snack table.  Hubby made banana bread the other day for the table and it was gone by 11am.  Someone brought in bagels this morning. And there are Girl Scout cookies everywhere.  And I work with words all day.  I can get my geek on and it’s cool, because everyone is doing the same.

Third thing.  I wrote a post for my blog.  And it feels so good to be writing again.  I haven’t enjoyed writing for about a year.  I missed it and I was angry about that.  But by the time I got home each night I didn’t have any freakin’ energy.  My blood pressure was up, I’ve got about 60 pounds to lose, and I was just angry all the time when I got home from work.  I barely had time and energy for real interactions with my family.  I certainly didn’t want to write anything down.  And now I do.

Three things.

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I’m gazing at the beauty of creation through the windows of Hemlock House. The retreat for the youth group has gone well and all are enjoying the free time before the last session.

It’s been six months and it is quite fitting to be in the Poconos. We came here most weekends for several summers to take the boat out on Lake Wallenpaupack. We’d stay at the same little motel each time and Hot Dog Johnny’s was always a beacon of “almost there”. So much has changed since then.

So much has changed in the last sixth months. I no longer run a writing lab. I miss the people very much but my blood pressure and back muscles do not miss the stress. I am enjoying my new job. The pace is calmer and I can focus on one task at a time. I enjoy the challenges of the job and my new coworkers are quite nice, quite welcoming.

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People that I never thought I would see again are back in my life. And I am the better for it. They have brought a new happiness and love into our family in ways we could not have imagined.

And so I sit with a sense of peace looking at majestic views through the windows of Hemlock House. I will have to drive through the scene of the accident six months to the day, but it will be with peace. With love. With old happy memories melding with new happy memories. As we drive through that spot of the road, I may cry, simply because I miss Bear so much. But I keep sharing the love and happiness and joy he always shared. For our time on this earth is short, so we must come in and know each other better, man.

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Today was cemetery day. We visit the cemeteries and place wreaths on the graves of loved ones. Usually we visit four. Today we went to five.

As I go through these life traditions without Bear, it does become more real. A Christmas Carol without him. And now I have placed greenery at his niche. Surreal yet normal traditions, just one now without him and one now with him.  I miss him.

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We say things everyday that are from him. Each little Bearism causes a bittersweet smile to pass across my face.  New truths are discovered about family when someone passes and that has been particularly challenging.

But it has also opened doors and windows and especially hearts. I know Bear likes that.

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Soul Sadness

It’s been four months.  And my soul is still so sad. I spent most of today with tears gently streaming down my face.  While sitting at the cemetery, it was a full-out bawling.  I got home and planted my ass on my love seat and stared at the television.  Then I did some grading.  Then I went on Facebook.  I checked my Twitter.  I sit and try to fill my brain with thoughts other than my father.  I am going to be graphic below so if you don’t want to read yucky stuff stop reading here.  I need to write this out and writing it in my journal hasn’t cut it and so I am sending it out into the cyber world void.

I keep telling myself my dad is dead because I have not accepted it.  I should have by now.  I identified his body and that image haunts me in my dreams and while I’m awake.  I still see the shape of his body under the sheet and it just looked wrong.  The hospital had done a beautiful job with cleaning him up before I saw him, but he still had tears of blood gently streaming down his face.  From what I’ve been told that would have been because of serious head trauma.  I knew something was wrong with his legs that night and a few days later, when I cleaned out his car, I saw one of his shoes had come off at impact.  So I know I was right about his legs.  It was my father’s body on that table and I know that but I still think he will call any minute.  Or one of his goofy letters will arrive in the mail tomorrow.

All of our birthdays have passed without a card from him, except for my father-in-law’s birthday.  I don’t know if he sent a card in the mail to Pop, but I do know he would go over with a pie and the two of them would spend a couple of hours eating pie and shooting the breeze.  Thanksgiving, Christmas.  I can’t imagine it without him.

Tomorrow night we go to A Christmas Carol.  My father started this tradition five years ago.  He had gone once before and then invited us the next year.  This will be our fifth time and our first time without him.  I am bringing a box of tissues and fully expect to be a mess.  I wonder if tomorrow night will make his death more real.  I need to accept it and find a way of living with it.

But I miss him.  And I want to ask him how he is.  I want to ask him for advice about anything.  I want to show him the boys’ school pictures.  I want to listen to one of his really, really long answering machine messages.  I want to see him when he comes on campus for an event.  I want to pick out a new bumper sticker for his car.  I want to hug him again.

I want the image of him in the trauma center erased from my memory.  I know by the extent of his injuries that it was merciful that he died, and the doctors said he was in a coma the whole time and didn’t know what happened, but I want him back.

And I know there are so many other things in this world that are sad, tragic, horrific, probably more so than one woman experiencing the death of her father, but this is where my mind is stuck.  I am trying to unstick it.  I feel like I’m caught in a loop and can’t get out of it.  I want to focus on the happy memories of my father, the wonderful things he taught me, the love he gave me unconditionally.  I just wish I had longer with him.  He came into our lives when I was twelve, adopted me when I was 22, and I want more time.

I realize though that I have to find a way to accept the death of my father and get my mind “not stuck” on that night four months ago.  Before it becomes all encompassing.  Before it impacts my husband, my sons. Before I get stuck with this sadness in my soul.

So far I’ve been using counseling and food.  I’ve gotten good at the food part.  Put on 25 pounds in four months.  I’ve gone to my other doc at this point to ask for something to take the edge off and to check my blood pressure with the weight gain.

So now I’m trying this too.  Writing soothes the soul.  So I’ve been told.

 

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October 21, 2015
A day that made history by becoming history. Back to the Future is now all in the past. For thirty years these movies have been a part of my life. I love the characters, the story, the science, and the friendship between Marty and Doc.

We spent the day celebrating. We took in parts one and two at the movie theater and then we were headed home to watch part three in our pjs. But the Rocketsled (our minivan) had other plans. AAA said a tow truck would be there in a little over an hour, but they didn’t have one with an extended cab, so I’d have to find my own way home for me and my sons.

While still on the phone with AAA, some random number kept calling. When I got off the phone with AAA, I called Hubby and that random number called again. I answered after saying bye to Hubby. It was a tow truck driver from AAA, only ten minutes away, and with an extended cab.

Instead of getting home around midnight, and recruiting the help of a neighbor in the process, we were on our way home within 30 minutes of calling AAA. As we drove the 15 miles to my mechanic, the driver pointed out his garage.

Bear Auto and Towing.

Thanks, Dad, for getting us home safe and quickly.

And happy Back to the Future Day everyone!

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Proper and affordable treatment for the millions of people living (or trying to) live with mental illness has to happen. It will only happen when society forgives and forgets the stigma and accepts that a person with mental illness is no different than a person with Type 1 diabetes or Type 2 diabetes. Some people are born with “hard-wiring” that will not function properly just through nature, like Type 1 diabetes. Others have “hard-wiring” that given the wrong environmental circumstances will stop functioning the correct way, just like Type 2 diabetes. So many people live regular, boring, typical lives with mental illness. So many others accomplish amazing feats because their mental illness allows them to see the world in a way that your regular, average Joe could never see it. And so many others struggle just to make sense of the day, each and every day.

I wish my voice were louder. I wish I could get the “right” people to hear me. To sit down and hear and listen to my journey. To know with treatment, life can be beautiful, even living with mental illness. I don’t think about schizophrenia everyday. I think about my family, my life, the joy in the world, and the sorrow, ways I can contribute to this beautiful world in some small way. I wish that life experience for everyone living with mental illness.

Get rid of the stigma. You do know someone living with mental illness. I promise you do. The best part is when you don’t know it because she has proper treatment.

My prayers go out to the latest victims’ families. Please. Someone with the power, use your common sense and help get treatment to people who need help. Please. Don’t make more families have to feel what the families in Oregon, Connecticut, Virginia, Colorado… are feeling. Stop the stigma and start the treatment.

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